Important advances in cerebral palsy research can be achieved with the support of people like you
- Formation of CP Quest – Community and Researchers together
- Surveyed consumer research priorities
- Introduced targeted calls for research in the Research Foundation grants program to address priority areas
- Founded the Cerebral Palsy Alliance Stem Cell Reference Group.
- Appointment of Chair of Cerebral Palsy and Chair of Technology and Innovation
- Collaborating with the world’s best researchers to drive research breakthroughs
- Hosted 7 international cerebral palsy summits, bringing together the best and brightest minds in the field
- Lead the development and launch of the Australian and New Zealand Cerebral Palsy Strategy, 2020
- Helping to promote, develop and support International CP Registers including in Low- and Middle-Income Countries
- Supporting early intervention trials in Low- and Middle-Income Countries
- Global promotion of gold standard cerebral palsy diagnostic and assessment tools
- Promotion and support of the International CP Genomics Consortium (ICPGC).
- Commissioned the Economic Impact of Cerebral Palsy in 2018 report to better understand the costs associated with cerebral palsy and thus assist with advocacy
- Established and continue to promote and support the work of the Australian CP register – the largest whole country CP register
- Leading the largest study in the world on birth defects and their pathways to CP
- Investigated the role of CMV as a contributing cause to some cases of CP
- Partnered with CMV Australia and the Department of Health to promote awareness of strategies to reduce the risk of CMV in pregnancy
- Published the world’s first International clinical practice guideline for early diagnosis of cerebral palsy
- Launched Australia’s first early diagnosis clinic
- Investigating the accuracy of early cerebral palsy detection from 12 weeks
- Leading the world’s largest early intervention clinical trial to improve movement and cognition
- Unlocking the early signs of cerebral palsy to inform parents about prognosis
- Introduced CP Check-UpTM to reduce complications
- Developed International guidelines for eye-gaze control technology
- Investigating intensive therapy known as “HABIT-ILE” for training both arm and leg movement
- Investigating a novel therapy to improve participation in the community
- Conducted Australia’s first cell therapy clinical trial for cerebral palsy
- Established CP Commons, a tool to share genomic and clinical data to drive collaborative CP genomic research.
- Supported research into the use of therapeutic hypothermia for babies born full term who are very sick and are admitted to intensive care shortly after birth, plus erythropoietin (EPO) as an adjuvant therapy
- Supported and advocated for research on magnesium sulphate as a preventive treatment for extremely preterm babies
- Botox treatment rolled out to decrease muscle stiffness
- Established “CO-OP” (problem solving intervention) as an effective intervention for improving function
- Established how to conduct exercises effectively at home as a way to provide more intense services
- Established the effective dose of therapy.