|
MyCPA
person symbol

The best start, every baby, everywhere: Global Summit to develop CP Prevention Roadmap

More than 40 clinicians, researchers, policy makers, advocates and people with lived experience from 16 countries gathered in Bangkok in September for the inaugural Global Cerebral Palsy Prevention Summit, the first international meeting dedicated to preventing cerebral palsy (CP). Hosted by Cerebral Palsy Alliance, the Summit focused on a simple but powerful question: how can we protect babies' brains to help ensure every baby has the best possible start in life?

Although rates and severity of CP have fallen in Australia and other high-income countries, significant global inequities remain. Rates of CP are estimated to be at least twice as high in low- and middle-income countries. As antenatal and neonatal care improves, more babies are surviving in these settings. In many contexts, access to services remain limited. This creates an urgent need to strengthen both prevention efforts, as well as access to early detection, rehabilitation and assistive technology.

Over three days, delegates worked together to identify global CP prevention priorities, develop practical projects and begin building a Global CP Prevention Roadmap and Network. Seven priority areas were identified spanning the continuum of care, from preconception and pregnancy through birth, newborn care and infancy. Delegates workshopped how proven approaches can be adapted and implemented across diverse healthcare settings worldwide.

A defining feature of the Summit was the strong involvement of people with lived experience of CP. Their stories opened each day and ensured discussions were grounded in the experiences of individuals and families. Delegates consistently highlighted these contributions as among the most influential parts of the meeting.

The Summit concluded with a shared commitment to ongoing collaboration. A Summit Report and Global CP Prevention Roadmap are now in development and will guide future work to accelerate prevention efforts around the world. This endeavour is far too large for any one organisation or country to approach alone – but together we have an unprecedented opportunity to make a difference. A new Global CP Prevention Network, including people with lived experience of CP, is being established to turn evidence into action. Please look out for opportunities to join us in this journey.

As delegates left Bangkok, there was a clear sense of momentum and shared purpose. The message was simple – by working together, we can help give every baby the possible start in life, wherever they are born.