Join CP Quest

Bringing researchers and the CP community together to make a meaningful impact

Community and Researchers together

CP Quest is a world-leading collaboration between the Cerebral Palsy Alliance research team and people with cerebral palsy, their families, carers and advocates.

The group was launched in 2015 to better integrate the lived experience of people with cerebral palsy into our program of research.

 

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people with cerebral palsy and their family members are actively involved in guiding our research priorities through CP Quest

 

As a complex and varied condition, everyone’s experience of cerebral palsy is different and unique – and it is these unique perspectives that are vital for researchers to deeply understand when conducting research into treatment and prevention of CP.

To date, CP Quest members have been involved in dozens of research projects, authored important academic papers and sharpened our research with the perspectives and insights only lived experience can bring. We strongly believe that involving the CP Community in CP research:

  • Improves the quality of research
  • Ensure that research is meaningful for families
  • Reduce the time it takes to move research into practice
  • Result in better outcomes for people living with CP and their families

My name is Shannon Clough. I am very passionate about CP research and have proudly taken on the role as Chair for CP Quest. When my beautiful son Ethan was born at 26 weeks he was diagnosed as being profoundly deaf and having severe cerebral palsy. I, like so many parents, wanted answers and, even though I have now lost my beautiful boy, I still want those answers for people with cerebral palsy and their families. Cerebral Palsy Research is the way. I invite you to join CP Quest and help guide CP research now and into the future. You can be involved as little or as much as you wish. Your knowledge and experience is highly valued, and we need your help.

I invite you to join CP Quest and help guide CP research now and into the future. Your knowledge and experience is highly valued, and we need your help.

Stem Cell Reference Group

To join the Cerebral Palsy Alliance Stem Cell Reference Group. The purpose of this group is to provide the perspective of people with cerebral palsy and their families to shape decisions about research priorities, specific research questions and the design of new stem cell research projects.
Interested in joining? Please email Megan Finch-Edmondson

CP Quest research priorities

Our research team is constantly working collaboratively with people with cerebral palsy, families, carers and the wider community to understand that our research is informed by, and meaningful to, people with cerebral palsy
Find out more about our research priorities.

Joining CP Quest is an opportunity to:

  • Communicate your views and ask key questions to ensure that issues important to you and the CP Community are identified and prioritised.
  • Expand your knowledge about CP research, observe first-hand how it is undertaken and funded.
  • Be part of a research team working towards making a difference for people living with CP and their families.
  • Use your skills and lived experience to improve CP research.

To join CP Quest you will be required to register as a volunteer with Cerebral Palsy Alliance. We invite you to express your interest by emailing us on cpquest@cerebralpalsy.org.au