CP Quest is a world-leading collaboration between the Cerebral Palsy Alliance research team and people with cerebral palsy, their families, carers and advocates.
The group was launched in 2015 to better integrate the lived experience of people with cerebral palsy into our program of research.
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As a complex and varied condition, everyone’s experience of cerebral palsy is different and unique – and it is these unique perspectives that are vital for researchers to deeply understand when conducting research into treatment and prevention of CP.
To date, CP Quest members have been involved in dozens of research projects, authored important academic papers and sharpened our research with the perspectives and insights only lived experience can bring. We strongly believe that involving the CP Community in CP research:
My name is Shannon Clough. I am very passionate about CP research and have proudly taken on the role as Chair for CP Quest. When my beautiful son Ethan was born at 26 weeks he was diagnosed as being profoundly deaf and having severe cerebral palsy. I, like so many parents, wanted answers and, even though I have now lost my beautiful boy, I still want those answers for people with cerebral palsy and their families. Cerebral Palsy Research is the way. I invite you to join CP Quest and help guide CP research now and into the future. You can be involved as little or as much as you wish. Your knowledge and experience is highly valued, and we need your help.
I invite you to join CP Quest and help guide CP research now and into the future. Your knowledge and experience is highly valued, and we need your help.
Joining CP Quest is an opportunity to:
To join CP Quest you will be required to register as a volunteer with Cerebral Palsy Alliance. We invite you to express your interest by emailing us on cpquest@cerebralpalsy.org.au
