The Australian CP Register (ACPR) is a confidential research database of clinical information about people with cerebral palsy.
The main aims of the CP Register are to monitor and report the changing rates of cerebral palsy, gain further understanding about the causes of cerebral palsy, evaluate preventive strategies, and assist in planning services for children and adults who have cerebral palsy.
Key findings of our most recent report include a decline in rates of cerebral palsy across Australia from around 1 in 500 children (2.0 per 1000 live births) to 1 in 700 children (1.4 per 1000 live births).
In addition, the severity of cerebral palsy in children has become milder in the most recently reported birth years. 2 out of 3 children living with cerebral palsy could walk without assistive equipment and more than half did not have an intellectual disability.
These changes in rates and severity can be attributed to the cumulative impact of numerous advances in the health and care of pregnant women and their babies, better management of high risk pregnancies, improvements in the neonatal intensive care, and the implementation of public health initiatives to prevent accidents, all underpinned by Australian and international research.
The register is managed and funded at the Australian level by the Cerebral Palsy Alliance. Each state and territory CP Register is managed locally, in NSW and the ACT the data is managed by the Cerebral Palsy Alliance Research Institute.
For more information
Website: https://www.cpregister.com/
Email: CPREGISTER@cerebralpalsy.org.au
Tel: 02 9975 8928
NSW CP Register – Dr Sarah McIntyre
ACT CP Register – Shona Goldsmith