Zeke’s cerebral palsy presents challenges, especially with the weakness in his left leg. His mum shared that as he grows, the difficulty has become more noticeable, causing him to trip often and struggle with physical tasks, particularly when he is tired, and is unable to fully control his leg when trying to move.
Zeke participated in the HABIT–ILE intensive program at Cerebral Palsy Alliance’s centre in Kingswood. This evidence-based proven therapy, which was initially only at our Allambie Heights centre on Sydney’s northern beaches for 6–15-year-olds has recently been expanded to cater for younger kids aged 2-5 and at different CPA centres. It involves two weeks of one-on-one intensive therapy in a small group environment for 3 .5 hours per day.
Brielle’s goal for Zeeke in participating in the HABIT-ILE program is to focus on strengthening his left leg, improving his mobility, and seeing how much he can progress in terms of his physical abilities.
Zeke struggles with tasks like kicking a ball, using his whole body to push the ball rather than kicking it with his feet. Similarly, when it came to stairs, Zeke initially placed both feet on one step, with HABIT-ILE he worked on increasing coordination and strength.
The activities within the HABIT-ILE program were enjoyable for Zeke. He loves the playful elements, like walking up stairs while stepping on a “fart cushion.” Brielle appreciates that every activity in the program has a purpose, and the therapists explain the reasoning behind each movement. She explains,
“There’s a reason behind every activity they do. It’s not just having fun and playing. It’s all fun, but it’s all therapy.”
Brielle also appreciates the practical tools the therapists provide, which allow them to practice small tasks at home, working towards Zeke’s goals each day.
Zeke has also enjoyed the social aspect of the program. He made a friend in Kenzie, a little girl he worked alongside in the intensive program. Zeke loved showing off the skills he was learning to Kenzie, and Brielle values the opportunity for Zeke to connect with other children who have cerebral palsy.
“You hear ‘cerebral palsy’ and think of a person in a wheelchair. But there are different levels of CP. Zeke is GMFCS Level 1. It’s lovely to chat to other parents who are going through the same thing, and nice to see other kids with cerebral palsy with the same capacity to help each other out,” Brielle shares.
Zeke’s usual physiotherapist, Sarah, has been a constant in his care with CPA supporting him since he was 14 weeks old, and it’s been a great comfort for both Zeeek and Brielle to have Sarah involved in the HABIT-ILE program. Zeke’s therapists are familiar with his needs and progress, which has helped make the transition into the program smoother. Zeke also continues to receive occupational therapy and speech therapy, which further support his development.
Brielle is excited about what lies ahead for Zeke, especially as he is about to become a big brother to twin sisters. Zeke loves babies and is very affectionate toward them. “Zeke is a very special little boy, and I feel very blessed to be his mum,” Brielle says.
As Zeke continues to grow, Brielle looks forward to seeing all the new milestones he will reach.
