My little brother Ben

My little brother Ben
Posted on Fri 27 Nov 2020

My name is Amy Capararo and I’m from Coffs Harbour.  

My little brother Ben was born with cerebral palsy. He also lives with intellectual delay, epilepsy and mild autism. 

In 2018, Ben became the youngest person with CP to trek to Mt Everest Base Camp. I tell that story at most get-togethers and always have a lump in my throat and tears in my eyes. 

But behind his amazing achievements, I would be lying if I said there weren’t difficulties. 

This week, my other brother Blake was driving Ben home. Blake looked over and noticed Ben’s head had started to shake. He was having a seizure. 

Blake spoke speak to Ben in a calm and assuring way as the seizure continued.

When they arrived home, Ben was alert but he wasn’t sure what was going on. His body was paralysed and he was too afraid to be left alone.
He wouldn’t move until our mum followed him and stood at his door with him as he had a shower and changed into some comfortable clothes. 

They made their way to the hospital. They ran some tests on Ben’s blood and attributed the seizures to stress.

During STEPtember, you will see some truly amazing people. What you will not see is the day-to-day life of someone living with a disability, and how truly hard they work to be seen and heard. 

But outside of the hard stuff, Ben is 25 years old. He loves to dance. He is studying web design. He is a godfather. He’s raised thousands of dollars for Cerebral Palsy Alliance over the years. 

He just fills my heart with so much love and gratitude. 

[Ben with his support worker Joel. They trekked to Everest Base Camp together]

It was the Disney film that never happened.

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