This study will work with Aboriginal and/or Torres Strait Islander children/young people with cerebral palsy (CP), their families, and healthcare services providers (including Aboriginal health workers) to see whether the pathway designed in a different study, the EPIC-CP study, meets the needs of Aboriginal children/young people with CP and their families and what changes might need to happen to ensure the program is culturally safe and relevant for Indigenous families.
In EPIC –CP, children/young people with cerebral palsy (CP), their families, and health service providers from NSW Children’s Hospitals co-designed a pathway that helped families with their social needs.
Aboriginal children/young people and their families will come together in yarning sessions to talk about their needs for the pathway, assess the pathway and provide final sign off. Health care workers will attend separate yarning sessions to discuss the same things. These yarning sessions might happen online or if it suits participants, face-to-face in a community setting.
Contact:Dr Katarina Ostojic
Email: katarina.ostojic@sydney.edu.au
Phone: (02) 8627-8459 or 0452-539-414
Recruiting now!
