Pain education provides information and resources to help a person manage their pain. In this project, researchers will work in partnership with young people with CP, family members of young people with CP, and service providers to co-design a prototype of a CP-specific pain education program. A prototype is a draft model that outlines the key information to be included. We aim to work together to create a prototype that meets people’s needs and preferences.
1) Young people with CP, aged 15-30 years;
2) Family members of young people (aged 15- 30 years with CP). Family members include parents/legal guardians, siblings, spouse/domestic partners, and grandparents;
3) Service providers engaging in client-facing services to young people (aged 15-30 years) with CP. This includes health professionals, researchers, and disability service providers.
This research project has three parts. We are now up to Part 2: Online Delphi Survey.
Take part in a short online Delphi survey to help shape a new pain education program for people with cerebral palsy.
Across three quick survey rounds (15 minutes each), you’ll rate and prioritise important topics, with the option to suggest new ideas.
Surveys are completed in your own time over several weeks, and all responses remain anonymous. Your input will directly inform the development of a future CP pain education program.
Contact: Dr Katarina Ostojic at katarina.ostojic@sydney.edu.au or (02) 8627-8459
Closing date: late-2026.
