CP Pain Education: Co-designing a pain education program for young people with cerebral palsy

In this project, researchers will work in partnership with young people with CP (aged 15-30 years), family members of young people with CP, and service providers to co-design a CP-specific pain education program. The program will provide information and resources to help a person manage their pain. We aim to work together to create a program that meets people’s needs and preferences.

Who can participate?  

1) Young people with CP, aged 15-30 years;

2) Family members of young people (aged 15- 30 years with CP). Family members include parents/legal guardians, siblings, spouse/domestic partners, and grandparents;

3) Service providers engaging in client-facing services to young people (aged 15-30 years) with CP. This includes health professionals, researchers, and disability service providers.

What is involved?
This research project has three parts. You can take part in one or multiple parts. 

• We are starting Part 1– online focus groups- to understand what people with CP, their family members, and service providers need in pain education resources. 
• Part 2 will involve online Delphi surveys and 
• Part 3 involves online workshops.

Contact: Dr Katarina Ostojic at katarina.ostojic@sydney.edu.au or (02) 8627-8459

Closing date: mid-2026.