CP Quest: an invitation to get involved and inform cerebral palsy research

CP Quest: an invitation to get involved and inform cerebral palsy research
Posted on Wed 16 Feb 2022

When Shannon Clough’s son Ethan was born at 26 weeks he was diagnosed as being profoundly deaf and having severe cerebral palsy. Like so many parents, Shannon wanted answers – and cerebral palsy research helped to provide them.

CP Quest gives a voice to people with cerebral palsy, their families and advocates, allowing people with lived experience of disability to collaborate on research, inform decisions and ensure that research is meaningful and valuable to the CP community.

Shannon remains chairperson of CP Quest in memory of her amazing son, and she’s now inviting more people with CP to get involved in this vital project. 

“With CP Quest, you can help guide CP research now and into the future. As someone with lived experience of CP, your knowledge and experience is highly valued, and we need your help,” says Shannon.

And to sweeten the deal, we’ve got five FREE passes to next month’s ‘Better Together’ conference, valued at $660, for people and families with CP who sign up to get involved with CP Quest.

CPA is a proud partner of Better Together, which brings together the leading experts in cerebral palsy research together for five days of insights and education. Head here for more.

More about CP Quest:

CP Quest has been formed to involve the CP Community in decisions about CP research and to integrate lived experiences into research activities.

People with cerebral palsy and their families can be the most powerful supporters and promoters of cerebral palsy research and CP Quest is bringing the CP Community and CP researchers together.

We strongly believe that involving the CP Community in CP research will:

  • Improve the quality of research
  • Ensure that research is meaningful for families
  • Reduce the time it takes to move research into practice
  • Result in better outcomes for people living with CP and their families

For more information and to register your interest in CP Quest, head here.

Disability activist and author Hannah Diviney talks about celebrating the community wide commitment to STEPtember, her excitment for the upcoming World CP Day and the endless possibilities of assistive technology in her column this month. 

Cerebral Palsy Alliance-backed disability tech startups PolySpine and ResusRight have both been awarded prizes at the 2022 Good Design Awards, Australia’s most prestigious showcase of innovative and creative design