Logan’s story

Logan's story
Posted on Fri 11 Dec 2020

Logan lives with his mum and dad and ten-month-old sister Payton. He has diplegic cerebral palsy.  

He was born at 29 weeks due to his mum, Kayla, having severe pre-eclampsia. There were a number of complications when he was born. He was severely underweight. He had Torticollis when he was four weeks old. He spent the first three months of his life in NICU.  

He was watched very closely by a team of specialists, but the possibility of cerebral palsy wasn’t discussed.  

“He was very delayed, so it was hard to see what was going on. They were watching him because he was high risk, but he was still so young.” - Kayla, Logan’s mum. 

Almost as soon as they left the NICU, his parents started noticing something wasn’t right.  

“At five months corrected, Logan clenched his right hand in a fist and wouldn’t use his right arm. He looked uncomfortable when he laid on the floor. He had these jerky movements and they didn’t look like they were voluntary. And he was stiff in his legs and arms.” 

They followed up with Rainbow Cottage at Liverpool Hospital and were referred to the Early Diagnosis Clinic at CPA.  

“He was approaching nine months corrected. The team were really clear that we needed to get him a diagnosis straightaway or have him reviewed by a team of specialists. If we didn’t, he would miss out on getting an assessment at a really key stage in his development.” 

It turned out to be the best decision for his mum and dad:  

“We were facing the possibility that our newborn would have cerebral palsy for the rest of his life. We felt completely overwhelmed. But the team were comforting and welcoming.  

They always made sure we knew what they were talking about, what the plan was for Logan regarding tests and assessments, and ensuring we were OK. The way they explained everything, I always walked out understanding what they were looking for.”  

And Logan has made incredible progress ever since.  

“He has just come leaps and bounds. When we began with the Early Diagnosis Clinic, they said he needed early intervention now. We didn’t have NDIS, but they made sure he received physiotherapy, occupational therapy and speech therapy, and we didn’t have to pay for anything. 

At the start, Logan had global development delay of six to nine months. He was still babbling at twelve months old. He wasn’t able to crawl, let alone walk.  

But now he has completely caught up and even sitting ahead of his peers in speech and communication! Plus, he is doing everything a three year old can. He is still restricted in jumping and running but he is meeting expectations.  

If it wasn’t for therapies, I don’t think he would be where he is today." 

His parents are incredibly proud of him:  

“We never doubted him, but he was so little and so delayed, we didn’t want to put expectations on him. But he has totally blown us away.” 

Kayla’s message to anyone considering supporting the Early Diagnosis clinic is clear:  

“You would be helping so many families like ours. Our children already have setbacks and challenges that no-one else has to overcome, but this would give them best chance of a good start to life.  

Without the Early Diagnosis Clinic, we wouldn’t have had access to specialists, we wouldn’t have found out he had cerebral palsy, and we wouldn’t have known what support he needed. It’s definitely been life-changing for Logan and for us as a family.”

In support of World Autism Awareness Day at CPA, Tamsin Colley, one of our CP Active Champions, shares her experience being diagnosed with autism, her strengths, ambitions and the shifts she would like to see in attitudes towards autism. 

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The Early Diagnosis Clinic provides a trusted pathway to obtaining a diagnosis of cerebral palsy enabling quicker access to early interventions, family support and better outcomes for the future.