Help us understand the impact of COVID-19 on your child living with disability

Help us understand the impact of COVID-19 on your child living with disability
Posted on Fri 29 May 2020

Dear Parent/Carer,


You are invited to participate in an online survey about the impact of the COVID-19 pandemic on your child with a neurodevelopmental disability or rare genetic disorder. The survey questions are referring to the direct or indirect impact of COVID-19 – not only the infection but all aspects of life during the COVID-19 pandemic that includes social isolation, not having access to schools and therapy and the various stressors your family is facing and dealing with. We hope to identify the services and supports that parents and caregivers would find helpful during the pandemic.


The COVID-19 pandemic has impacted people in varying ways, and many people are feeling worried, anxious, fearful and overwhelmed by the current situation. Whilst COVID-19 has impacted everyone, it has been particularly challenging for children with a disability and their parents/caregivers and families due to, for example, significant disruption to routines and other factors associated with social distancing measures.


The findings from this survey will be used to inform the development of resources to support families in situations such as the COVID-19 pandemic.


COVID-19 Impact Survey


This research study is being conducted by SWSLHD in collaboration with UNSW, Sydney. Before you decide whether or not you wish to participate in this survey, it is important for you to understand why the research is being done and what it will involve. Please take the time to read the Participant Information Statement carefully and discuss it with others and/or the study team if you wish. The Participant Information Statement is attached to this email. Clicking on the link above and undertaking the online survey, will imply you are giving consent to participate in this research study.


If you would like any further information about this study, please do not hesitate to contact Professor Valsa Eapen, Coordinating Investigator (9616 4364) or Dr Anne Masi, Postdoctoral Research Fellow (9385 0621).

Fri 18 Dec 2020
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