Chronic health conditions affect approximately 40% of Australian children. Despite this, there are no overarching national guidelines for the transition from paediatric to adult care across conditions, and limited evidence to support existing practice.
To improve this transition for all young people with a chronic health condition, new research is being conducted by researchers from the University of New South Wales, with collaborators across NSW, Victoria and SA.
We are seeking young adults with a chronic health condition who have transitioned to adult care, or their parents, to be involved in online focus groups so that we can better understand the challenges of transition and what can be done better. All participants will be compensated $50/hour in gift cards, with workshops expected to take 2 hours.
For more information, please visit the study website at https://www.behaviouralsciencesunit.org/transitioncompass.html
Who can participate? We are looking for young people aged between 18-24 years and/or parents of a young person who is currently living with a chronic health condition (including, but not limited to, diabetes, cerebral palsy, neurological disorders, cardiovascular disorders, renal disorders, inflammatory bowel disease, and cystic fibrosis). The young person has experienced the transfer from paediatric to adult care. This transfer is defined as having attended their first adult specialist appointment.
Recruitment end date: 1st Feb 2024
Contact Name: Dr Jordana McLoone